Saturday, November 15, 2008

The same old deja vu all over again....

This was not intended to be a journal about my health and my dogs, but currently that seems to be what is going on in my life. About 2 weeks ago I realized the thrush was back. I had two separate infections - one in my mouth, the thrush, and the pseudomonas aeruginosa, on my skin. The antibiotics for the PA did not cause the thrush, since I had the thrush first. I just wasn't aware of it.

So, wanting to avoid getting to the point where I was before with the thrush (I will kindly skip the details, including the parts that made me gag), I realized I needed to see a doctor. Both my internist and my dermatologist are off on Fridays. The day I needed to be seen was - Friday. I called the internist's office and was advised I could either hope he would call in a script for me without being seen, or I could see a partner. I decided to be a Good Girl and see a partner.

Big mistake. He could not see the thrush and acted like I was nuts. He was rude to me, as if I was there to get drugs or something. I didn't ask for anything other than treatment for infections, and then some sleeping pills, since I need to use them again. He wrote me for 30, and I gave it back, saying I generally get 90 at a time. He said he couldn't give me more, so I politely returned it to him, saying I would wait until I see my internist as I pay the same co-pay for 30 as I do for 90. I left with no help from him at all, but I had to pay a co-pay for the visit. By the following Friday, I had more than visible proof of both infections, but it was after 5 pm. I was not a happy camper.

I had been getting ready to go out, and looked at my arm. I subconsciously thought, "Who bit me?" when I saw a bump on my arm. Then bells went off - I remember that same thought over the summer. Dammit, I knew the pseudomonas was back. The increased vertigo symptoms were more than enough for me to be sure, but the visual lesion just added to it. By Monday, I had probably 20 of them.

I spent the weekend counting lesions of pseudomonas and hoping for a nice juicy one that would be easy to test. I got my wish, sad to say (I still have it, almost a week into treatment). The thrush developed very fast and by Monday there was no question whatsoever. I went to my dermatologist, who seemed mystified that both had come back. Both are opportunistic infections, not likely to bother someone who doesn't have a compromised immune system. He asked me if I have a hot tub. I said no, but I had been in one a year and a half ago. No good, he said. Pool? No, I don't swim. He gave me two medications for the thrush and increased the strength of the antibiotic and increased it to two weeks, instead of one.

Had the partner of my internist only listened to me the week before, I could have avoided the two infections getting worse so very fast. I can taste them both, separately, as I told him, plus I had a definite white area on my lower lip. I was disgusted with the partner and will never see him again no matter what. His attitude downright sucked. I will mention it in detail to my regular internist next time I see him.

In the meantime, my appetite is again gone, as if I didn't lose enough weight fast enough to begin with. I have enough energy to spend about 2 hours a day doing something more strenuous than reading, and that is on a good day. I can't sleep even with a sleeping pill other than in a light sleep. I need my new sleep medication, but won't even begin testing to find out what went wrong for at least a few more weeks. There is still a question regarding the electrolyte imbalance I had that sent me to the hospital. Did the new sleep medication cause it? It's hard to tell, since suddenly so many things are out of whack.

In my disgust, I made an appointment with an infectious disease specialist. I want to know why these infections are recurring in someone who hasn't had a cold in a few decades, who can kiss someone with the flu and not get it, and who can be exposed to almost anything and suffer no effects, but has twice had two opportunistic infections. One of these, probably the pseudomonas, is causing my vertigo, I am pretty sure. It started acting up again pretty heavily when the infection returned, but the partner didn't care at all. Sure, he wasn't trying to move through a world that seems to be on LSD 24/7.

Other than that, Molly finally learned to play a game with me :-). I squeaked a toy for her, and called her to me. She came, and I acted like she won the lottery. Then I moved, and squeaked a toy. She came again - same thing. She enjoyed this as a game. It's hard to find games for a totally blind dog, but I think I finally found one.

In just a short time, I will be traveling. Let's hope my vertigo lets up a bit more so I can walk through an airport and not bounce off the walls. I just want to have a nice, long, languid weekend, with no worries about infections and vertigo. My dermatologist swears I am not contagious. I might believe him.

There has to be a silver lining, yes? Let's see. I can wear a size 4 now, for the first time in 10 years. Molly can no longer get on top of the kitchen counters to get food and risk breaking a leg. I think that is about it. Nothing else seems promising regarding my health and her eyesight getting flushed without warning. Oh yeah, and ST being 500 miles away - that is not a silver lining.

Who is going to change the batteries in my smoke alarms this Christmas? I can't even get on a ladder with vertigo. Nor can I put up a Christmas tree - Molly has no blink reflex and could easily put an eye out on a branch. I can do without a Christmas tree. I can't do without Molly.


I'm mostly known as 'MA' said...

I hope they can track down the problem and get you some relief and that you can travel and enjoy it too. Glad your little Molly has found a game to play. I know my beagle loves his play time. It doesn't last as long as it used to but he likes those squeeky toys too.
'On Ya'-ma

Anne said...

Thinking about you all the time. Love ya a lot. Anne

Rose said...

How RUDE! Like you I do not tolerate people who do not behave respectfully to me. What a jerk!

Hope you figure this out soon!

(Cassie) said...

Please try to eat some broth or mashed potatoes, or whip up a healthy smoothie.. Your body needs some nourishment in order for you to be well.
I am sorry dear friend you are in such a bad way.
You are in my thoughts and prayers.

Martha said...

I'm so sorry to hear you are still having so many health problems! I hope the Infectious disease doctor can figure it all out, it sounds miserable! :-(

sunflowerkat321 said...

I'm so glad I found you but so sorry to read all that you're going through. I'm pissed at that internist's partner, and I'm not even the one who's suffering. You must be livid. I hope the meds they gave you help you to feel better very soon.

Missie said...

I hope you feel better soon!

Paula said...

Awww so sorry you've got health problems again. Hope you get better in time for your travels.